Amy's Cancer Blog

So much to say today

Hello my wonderful warriors! I hope this post finds you all still fighting the fight for life!

Last week I had a CEA done, it went from 2.6 to 4 since I finished chemo, not good. I also had a PET Scan that showed “some” activity in the esophogus and ascending colon but not sure it is cancer. I haven’t seen the doc yet (I go on 5/23) but I did call as soon as I saw my results online. Hubby hates that I can see my results online. Anyway, I called my oncologist right away because I did not want to wait a month to see what is going on. The nurse was very sweet and explained to me that if the doctor had real concerns he would call me but for now he wants me to continue resting from chemo and we will talk at my appointment. I also am going in again for my colonoscopy on 5/8 since the last one they couldnt complete (still had poop in me)lol. I am sure if there is cancer activity they will be able to tell me right away and then the doctor will get me in sooner. I just don’t know if I am up for round 3 of chemo, but since I am a fighter, I will do whatever the doc suggests.

Update on Mark
He is doing very well but the wounds where his “butt” were are still not healing. He might be going back in for more surgery so keep him in your prayers. He is still in DC. I nominated him for the Red Cross Hero Award and he won! I am going to the honors breakfast on 5/10 to accept the award for him as he asked me to do so. I feel so honored that he asked me!

Now for more good news!

My husband rides a harley and I always wanted to learn, but I didn’t want to learn to ride unless I had a bike. What’s the sense in going through the classes and getting a license if I have nothing to ride right? So, on Saturday we went to pick up a treadmill that one of my dear friends was giving me and hubby said let’s stop at the harley dealer. He wanted to pick up an oil filter for his bike. Well, I saw a bike I loved and said to my husband, “I want to ride, I really really do want to learn before I leave this world”. Well he ended up finding his “dream bike” there also. So we went home, got his bike and went back and ended up buying 2 bikes, one for him and one for …..........Me! I am so excited I can’t hardly stand it! This has been on my bucket list forever! We are picking up the bikes tomorrow. He will be riding his new bike home and I’ll be hauling mine in my truck….lol I am going for my motorcyle permit on Thursday so wish me luck! Hubby is going to teach me and I am going to take the classes with my son. I am scared but I want this so badly and hubby always finds a way to make my dreams come true! He has been so wonderful to me. When I start getting sad or angry about the cancer he talks me through it with a positive attitude. I just live one day at a time and whatever God has in store for me, I accept.
I have attached a pic of the bike I am getting! It is an Iron 883 Sportster!

Love, hugs and prayers to all!
amy [[]]

Posted on April 30, 2012 at 11:03:50 AM by Amy (So much to say today, 10 comments, 354 views)

Jessicafk11, Larissa like this.

3 people sent you a hug.

Amy, that is AMAZING! Wow! Of course I am speaking of the Harley and not the marker levels. You know. I am so excited FOR you, I wish could see you ride your new bike. I just love it!
Also, how wonderful that Mark’s nomination by you for the Hero Award was accepted…. I am in awe of your generosity of spirit and energy. This is a wonderful post, Amy. Best of luck getting on your new ride very very soon! xoxo!

Posted on April 30, 2012 at 12:12:54 PM by 1 Very Palpable Hit

Hi Amy—
I hope your colonoscopy goes well and you are squeaky clean—lol! Try not to worry about the CEA level until you are given a reason to worry. Also, if the PET scan results were troubling to your doctor, I’m sure he would be seeing you much sooner. Here’s hoping that everything will turn out to be inflammation or something that is not serious. About the bike, I hope you have fun on it and I beg you to be careful. I have family and friends who ride them and I worry constantly. You are now on my “worry” list. But I can not argue with someone who is pursuing their dreams—I have done the same. Take care, sweet friend.

Love,

Martha

Posted on April 30, 2012 at 1:09:46 PM by Private User

I am still here!

Hello my fellow warriors! I hope this post finds you all well. I am trying to play catch up on all of you so bare with me, I never ever forget you or stop praying for you.

It’s been almost 5 weeks since I finished chemo again. MOnday I get the blood work, CEA and Tuesday is the PET Scan. Of course I don’t see the oncologist until a month from now but I’ll be able to see my results online once the doc reads them. I am having so many mixed emotions. One minute I am feeling positive and the next negative. I was so sure I had beat this the first time and even the docs were sure and that quick it was back. It’s hard to believe I am back to no hair, a puffy tummy from chemo, and all the lovely side effects of chemo. OH how I did not miss them. My latest complaint besides not having hair is the heat flashes and night sweats. The first time I went through chemo it put me into perimenopause, so I guess I am there again. I am having 20-30 heat flashes a day and every single night I wake up in a pool of sweat. It is disgusting! Other than that I am slowly, and I mean slowly, recovering. I am hoping to go back to work on June 4th if all tests are good. I miss my job so much.
We have been busy remodeling our home and it has been exhausting. I can’t do a lot and it drives me crazy. I am not one to rest all the time, but I just can’t fight the aches, pains and weakness. I remember the last time I went through chemo it was a year until I felt like my old self again.
Besides all that there have been other problems in my family. My 16 year old daughter was just diagnosed with an eating disorder. She has been vomiting after eating for quite some time now. She is also depressed. She is now seeing a psychiatrist, councelor, dietition, and an eating disorder doctor. Between her and I we are always at a doctor or getting tests. My heart is breaking because I didn’t know this was happening. She hid it very well. This all stems because of my cancer and it has me so so mad! My daughter is struggling with the fear of loosing me and I can’t do a damn thing about it. Please prayer for her.

As for Mark, he is doing good. He and his family are now in one of the hospital’s apartments. They were just in California to greet Mark’s troops home that went to Afghanistan with him. I am still doing fundraisers for him and will continue until he is home. Once he is home I hope to start fundraising for the next wounded warrior. I hate complaining about my hair when I know it will grow back but Mark’s legs won’t. I feel so selfish when I through myself pity parties.

Well, I better go check up on all you and make sure you are all behaving and fighting with all you got!

Hugs and love
Amy

Posted on April 22, 2012 at 4:28:24 PM by Amy (I am still here!, 10 comments, 611 views)

5 people sent you a prayer.

3 people sent you a hug.

Hi Amy Its good to hear from you. You are such a fighter. None of this is easy and it takes all you got to make it through and you do it so well. I will continue to pray for you and your daughter too. I know its so hard on our kids. My son has been my rock and is the one who took me to my treatments and sat with me thru chemo. I don’t know how I would have done it without him. He is 23. But me having cancer really was a wake up call that although I am as tough as nails, he saw me looking like death. It changes how we look at life now. We appreciate more now the little things. My success becomes his too. We share that, you know what I mean. Take care and keep in touch:) hugs Sabina

Posted on April 22, 2012 at 5:00:54 PM by Private User

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